I am the lead author of the largest global study of living with MND, examining health & social care, family life, and access to communities.

Dr Jo Ferrie

Lecturer in Social Research Methods and Director of Glasgow Q-Step
School of Social and Political Sciences, University of Glasgow

Email: Jo.Ferrie@glasgow.ac.uk

I am a sociologist working with the Strathclyde Centre for Disability Research at the University of Glasgow since 2001. In 2013 I completed (with colleagues Prof Nick Watson and Dr Phillippa Wiseman) a three year study funded by MND Scotland. This was the largest global study into what it is like to live with MND and examined social care, health care, family and community support networks. With MND Scotland’s help the report was used successfully to campaign for an increase in Specialist Care Nurses in Scotland. This work builds upon earlier projects that have explored quality of life with adults who have a muscular dystrophy.

Full Profile: www.gla.ac.uk/schools/socialpolitical/staff/joannaferrie/

Download Jo’s report here: Living with MND (PDF, 1MB)
Or read the executive summary on the MND Scotland website: MND report executive summary