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All information is held by the University of Edinburgh and will be treated confidentially and with sensitivity. The data may be used by the University for sending publications electronically, for membership administration and in our fundraising for the Euan MacDonald Centre for Motor Neurone Disease Research. Under the terms of the 1998 Data Protection Act you have the right to object to the use of your details for any of these purposes at any time. If you wish to change your details or how we contact you, or wish to request a copy of the information we hold about you, please email EMC_Admin@ed.ac.uk or write to us at Euan MacDonald Centre for MND Research, Chancellor’s Building, University of Edinburgh, 49 Little France Crescent, Edinburgh EH16 4SB.